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Our Mission

Washington Autism Alliance (WAA) expands access to healthcare, education and services for people with autism spectrum disorders (ASD’s) & related intellectual and developmental disabilities
Who we are?

Vision

All families in Washington State have the resources they need to support the well-being of loved ones with autism and other intellectual and developmental disabilities.

Values

Calm, confident competence.
Creative, cutting-edge advocacy.
Nimble, flexible and responsive service.
Company Founded
2007
members Total
5900

Why
Choose Us

WAAA is the nation’s only legal advocate for people with autism and other intellectual and developmental disabilities to access healthcare and education regardless of ability to pay.
We have a highly successful track record of legislative advocacy.
We’ve opened access to service for nearly 10,000 clients directly and ensured rights to coverage for over 58,000.
Our staff has specialized training and personal experience with autism and developmental disabilities, giving us practical and empathetic expertise.


How far we've come

WAAA started in 2007 with only four members who had children with autism and wanted to fight for their right to autism health benefits. Three years and 800 members later, we successfully achieved health care coverage for all of them through Washington state insurance. We also had several other wins for individuals covered by private insurers.

Our efforts have helped more than 12,000 Washington residents secure autism coverage to pay for vital therapies that would otherwise cost a family $25,000 to $50,000 per year.

Today we provide Insurance, Family Resource and Education Navigation to an average of 3,000 member families a year, in every County in Washington. We continue to lobby for social change and improved public policies on behalf of children and adults with autism. We are a mighty but very small team of fierce advocates and need your help to continue to make the impact we are making statewide.

Our Funding Sources

Washington Autism Alliance & Advocacy is a not-for-profit organization with a 14 person staff, 7 of them part-time. We provide a broad range of pro bono Insurance, Family Resource and education navigation and advocacy services to families of children with ASD/DD.

Roughly 90% of our work is paid for by Shayan's Fund, a legislative budget proviso combined with a grant both restricted to insurance navigation and insurance appeals. Our low overhead costs are covered by small private donations.

Law requires that we use Shayan's Fund only for health law advocacy and health-related supports. This leaves WAAA uncompensated for the many other vital services that our staff provides, often times on their own time. These include comprehensive and in-depth family case management, special education navigation and advocacy, technical support to providers and agencies on health, insurance and education policies to improve access to services for ASD/DD statewide and taking on systems reform to improve autism provider capacity to address pervasive waiting lists faced by low income children and families that can be up to 4 years. We seek to sustain these vital services through direct donor funding.

Impact & 
Growth Strategy


Washington State has an estimated 130,000 children, youth, adolescents and adults living with ASD, with nearly half of them are from low-income families. We want every one of them, rich or poor, to have an equal chance to thrive and succeed in life. With your support, WAA can:
  • Expand individual and systemic legal advocacy in healthcare and education through partnerships and a flexible fee structure.
  • Eliminate barriers to care through legal, legislative and grassroots partnerships.
  • Empower individuals and families through a network of social support and self-advocacy.
  • Pilot and scale training programs for primary care and behavioral health providers.
Thanks to the generosity of people like you, this is what WAAA has been able to accomplish in the past year:
  • Empowered 3,200 families through counseling, trainings and resources to secure treatment funding through private insurance and to secure effective services in public schools throughout the state.
  • Made headway with the Office of Insurance Commissioner to issue regulations on how insurance companies should address external appeals.
  • Advocated for better training and a career path for para-educators.
  • Advocated for over 1.5 million dollars in funding developmental and autism screening for toddlers suspected of having autism.
We could not do this without your support and donation! Your willingness to support and honor those with Autism will change the world! Thanks for being part of something bigger than all of us! – Arzu Forough, President & CEO
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Our Founder

Ms. Forough brings over 20 years of experience in training and development to her position, including leadership development, government relations and non-profit management.In 2007 she founded Washington Autism Alliance and Advocacy, developed the “Autism IEP supplement: Best Practice Guidelines for educating students with autism”. Her IEP supplement as well as guidelines for training teachers was legally adopted by the Washington State legislature in 2008 and became the requirement for all teachers working with learners with Autism Spectrum Disorders statewide.

Arzu introduced Shayan’s Law, Autism Insurance Parity to the Washington State legislature, petitioned the state Health technology Assessment of evidence based treatment of autism and ignited multiple legal actions that have clarified state and federal laws mandating insurance benefits for those with autism and other developmental disabilities.
Arzu Forough with son Shayan Forough
PRESIDENT / CEO
Arzu Forough
With her son
Shayan
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